The term “patient” is an overarching term we are using that includes individuals with personal experience with a health issue (here we mean stroke, atrial fibrillation, cardiovascular disease). Patients may also include informal caregivers, family, and friends.
Patient engagement pertains to meaningful, active collaboration in priority setting, conducting research, governance, and knowledge translation.
Patients who have experience with a health issue have the potential to collaborate in a meaningful and active way in the research process together with researchers. This type of collaborative process requires careful planning and is needed to ensure success over the long term. Our C-SPIN Patient Engagement Committee is working with C-SPIN researchers and members to foster the understanding of the importance of patient engagement.
We will work together with patients and researchers to make decisions about what type of engagement will best support C-SPIN, carefully considering the preferences of patients.